MyGenom At The Forefront of Rare Disease Genomics in the Asia Pacific

10 May 2026 – Kuala Lumpur became the meeting point for regional genomic medicine through the Inaugural Meeting of the HGP2 Rare Disease Alliance of Asia-Pacific (HGP2 RaDIAnce-APAC). Initiated by the BGI Group, this meeting brought together experts, clinicians, and government representatives to discuss the growing challenges of rare diseases across the Asia-Pacific region.

The National Institutes of Biotechnology Malaysia (NIBM) was represented by members of the MyGenom Project team, led by the Director of the Malaysian Genome and Vaccine Institute (NIBM-MGVI), Assoc. Prof. Dr. Syahrilnizam Abdullah, Ts. Dr. Ryia Illani Mohd Yunos, and Dr. Nurhezreen Md. Iqbal, together with Dr. Adiratna Mat Ripen, Prof. Dr. Zilfalil Alwi, and Prof. Dr. Thong Meow Keong.

During the meeting, Ts. Dr. Ryia Illani Mohd Yunos presented the MyGenom Project, highlighting its achievements and aspirations in supporting the implementation of precision medicine in Malaysia, as well as sharing how the Malaysian Genome Reference Dataset developed through MyGenom could contribute to rare disease research and diagnostics both locally and regionally.

As the Asia-Pacific region continues to face a significant burden of rare diseases, access to genomic testing and diagnosis remains uneven across countries. HGP2 RaDIAnce-APAC aims to strengthen collaboration, knowledge sharing, and capacity building within the region.

Malaysia’s participation in this inaugural meeting reflects the country’s growing expertise in genomics through initiatives such as MyGenom, while reinforcing its commitment to advancing genomic medicine and rare disease research at both national and regional levels.

#NIBM #NIBMMalaysia #WeAreNIBM #MyGenom #NIBM MOSTI HGP2RaDIAnceAPAC RareDisease Genomics PrecisionMedicine Malaysia AsiaPacific